The ACFL is committed to establishing long term solutions to disease suffers in an area of medicine which is grossly under-funded and often not recognised in general support activities. This proposal will provide some background regarding Children’s Endocrinology, define proposed avenues of assistance to suffers and their families, establish a timeline of milestones and outline the current financial plan.
Endocrinology is an area of medicine that covers a broad range of disorders with the most recognised being diabetes. The other areas of endocrinology include conditions which lead to abnormal growth, impaired physical development such as short stature, early or late onset puberty, bone health, thyroid and adrenal insufficiency. All these conditions require professional diagnosis, treatment and ongoing care (in some cases for life).
- Adrenal Insufficiency
- Type 1 & 2 Diabetes
- Thyroid Disorders
- Metabolism Disorders
- Calcium and Bone Health
- Pubertal Development Issues
The ACFL was established by a group of business owners with links via the aviation industry in Melbourne. The foundation has the support of various aviation related companies across Australia with initial funding provided by the CEO of Australian Corporate Jet Centres and SKJ Aviation. Professor Margaret Zacharin an expert in the field of Adrenal disorders is acting as an expert medical advisor to the ACFL board.
The foundation concept was established following meetings and discussions with medical providers at the Monash and Royal Children’s Hospitals. It was established that the ACFL could assist in areas that are deficient and require urgent attention:
- Lack of adequate support and education of trained personnel, and for families and carers tasked with supporting children and adolescents with Endocrine diseases. The associated psychological issues and long-term effects on children and adults suffering from these disorders.
- Awareness and increased knowledge of Medical and School staff concerning appropriate management of patients with Endocrine diseases.
- Research funding for current medical projects and working on new management strategies for Endocrine diseases.
The ACFL solution is to raise funding to be able to assist in the areas above and develop support for sufferers. The ACFL will use its profile and established links with researchers in Australia and around the world to establish a pathway to new treatments and management of Endocrine diseases.
To be able to make an impact and provide the support for raising awareness, providing funding for medical services and education the ACFL will be seeking Corporate Membership and conducting Fundraising projects for the ongoing effort. The ACFL has also sought support from the government in the form of a pledge for funding. The government funding if successful will support the foundations services and development.
Projects and services provided from funding:
- Training and deployment of specialist nurses to educate and assist families and schools with students who have Endocrine Diseases requiring daily medication. (*The ACFL is already subsidising a specialist nurse from the Directors personal funding at the RCH in Melbourne.)
- Establishment of a peer assistance network and psychological services specifically tailored for children, adults and families who have Diabetes and Adrenal Insufficiency and who require lifelong treatment and emergency management.
- Providing funding for researchers and projects into new treatments for all forms of Adrenal Insufficiency and potential cures for the various diseases.
With the foundation’s partnership with the Royal Children’s Hospital and based on manpower requirements established manpower requirements to complete current medical research the director of Endocrinology and Diabetes Professor Fergus Cameron has outlined staffing requirements to meet ACFL/RCH and Research goals.
The requirement would be initially as a 5 year plan with a view to establish programs to take effect in perpetuity.
The ACFL is seeking funding through corporate membership and fundraising to cover all of the program requirements. Endocrinology is a severely underfunded department and children are suffering daily as a consequence. The outlined financial support will change the lives of thousands of Australian patients and their families. Unfortunately, Endocrine health left untreated, misdiagnosed or poorly managed can lead to a child’s death. With Corporate assistance the ACFL will use its resources to raise funds and support this cause and achieve the fundraising goal
CEO- Altitude Children’s Foundation Limited